WHO WE ARE

The Africa Down syndrome network is a fully-fledged working network consisting of legally and fully registered National Down syndrome organizations for people with Down syndrome in Africa.

ADSN works as an umbrella body representative of all National DS organisations in the African Continent and the key focus area is to promote the inclusion and capacity building for people with Down syndrome and their families in Africa.

ADSN was initially formed on the 4th of February, 2014, when representatives of nine National Down syndrome associations from nine African countries met in Johannesburg, South Africa at the National office of Down syndrome South Africa, as founding members. This resulted into the official launch of the Africa Down syndrome Network and its’ first elected office bearers·

The following are the Founding member countries:

  1. Botswana
  2. Mauritius
  3. Namibia
  4. Nigeria
  5. South Africa
  6. Tanzania (main land)
  7. Uganda
  8. Zambia and
  9. Zimbabwe
WHAT IS DOWN SYNDROME

Down syndrome occurs when an individual has a full or partial extra copy of chromosome 21. This additional genetic material alters the course of development and causes the characteristics associated with Down syndrome. There are three types of Down syndrome: Trisomy 21(non-disjunction) accounts for 95% of cases, Translocation accounts for about 4%, and Mosaicism accounts for about 1%. Down syndrome is the most commonly occurring chromosomal condition.

Down syndrome occurs in people of all races and economic levels. The incidence of births of children with Down syndrome increases with the age of the mother. But due to high fertility rates in younger women, 80% of children with Down syndrome are born to women under 35 years of age. People with Down syndrome have an increased risk for certain medical conditions such as congenital heart defects, respiratory and hearing problems, Alzheimer’s disease, childhood leukemia, and thyroid conditions.

Many of these conditions are now treatable, so most people with Down syndrome lead healthy lives. A few of the common physical traits of Down syndrome are: low muscle tone, small stature, an upward slant to the eyes, and a single deep crease across the centre of the palm. Every person with Down syndrome is a unique individual and may possess these characteristics to different degrees or not at all.

Life expectancy for people with Down syndrome has increased dramatically in recent decades – from 25 in 1983 to 60 today. People with Down syndrome attend school, work, participate in decisions that affect them, have meaningful relationships, vote and contribute to society in many wonderful ways. All people with Down syndrome experience cognitive delays, but the effect is usually mild to moderate and is not indicative of the many strengths and talents that each individual possesses.

Quality educational programs, a stimulating home environment, good health care, and positive support from family, friends and the community enable people with Down syndrome to lead fulfilling and productive lives.

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